Why I write the blog?

For me and for you.

This force me to think more, find the words I've lost, inspect modern me, am I more the real me, does my illnesses fuck me up and how and how to fix or reroute things so the illnesses don't ruin the good around me.

This is therapy to me, clear my head, especially when I'm in bad place.

I try not to pour my thoughts to my loved ones so I write em down, they read em if they want. But I think so much and observe myself all the time that I need to speak it out somehow.

And because when I thought to start writing a blog, People were like.” YES. and please write it in english” I can’t be sure, but I think it might be that… I have couple nasty “illnesses” that are quite common, but still too much of a tabu and people want to break out of it and it’s always good that someone else does it first, no matter how poorly it’s done as long as it’s understandable?

I’ve been told, that my writings help people close to me, understand better why I behave so odd ways, but also people who don't know me tell it help them to understand their own loved ones, friends, bosses or neighbours. I have done some talking to little groups about this, mostly to parents of adhd children's, and there I get a lot that I really help, it’s easier to share the light in live situation when You can see the other’s and how they react to your message. Here, I don’t have that powerful tool, I hope to get messages or some words from you few readers, that am I really writing just for myself, is my english too hard to comprehend. I was thinking to write in both English and Finnish, but to be honest, I can’t keep me in one subject so long that I could do a translation either way and I’m bit shy to ask anyone to do the translation for me, because I use really weird and funny ways to express myself and then I would have to explain myself all the time so that someone could do proper translation. So I keep writing in english and hope for the best.

I live in difficult time, we are trying to find me working medication for two of three “illnesses” of mine. My old medication for bipolar disorder fall down because of fibromyalgia medication OR doctor suspect that it had never worked good but that medication made my brains bit sticky so I just didn’t even realise it. I have now 4th new medication under testdrive and… well it’s not working good either and my doctor is changing and you see the need to open up somewhere.

I have, thankfully, awesome family, quite understanding workplace (where I have been on sick leave 4 months soon) and talented professional to talk to about these. But for sure, I would slowly like to get this first problem, Bipolar disorder under control now so we could continue to find something for Fibro also, because that my readers, that is tiresome illness.

But in the meantime I keep doing art, If you are interested of my art, here’s link to my “homepage” and writing these blogs.

Feel free to share or whatever my texts, I don’t mind if I could make a living by helping others ways that I can do. Currently all I seems to be able to do is writing blogs, and making art. I’m not in shape to do those live “talk” sessions no matter how much I would love to be. I have to think bit selfishly now and get me on shape again, shape where I can give hope to people who come to listen me, not the opposite.

So yeah.

Jani

Medication

Medical stuff... I wasn't about to write about this. I'm no doctor. But people keep asking. 

I don't say names of the drugs because every human is different and something that didn't work for me might be perfect for others.

I don't say don't take medicine or take it, it's up to you and your doctor and family.

I say. Go out, do some exercise, eat healthy.. It won't hurt.. Probably.

I've been under surveillance of doctors a decade now… Or so I thought. After all this was not true. I had one medication. It didn't work to much and was bad for my brain but I didn't notice anything because I was under influence of the drug. Before that there was one drug that destroyed my artistic side and that was to much.

Some doctor updated my recipe time to time, no phone calls, no blood work… No Nothing . Then I went to get help to my pain and.. That started the landslide.

First they told me I have fibromyalgia, wrote me some weird tablets to it and those ruined the rest of my Bipolar medication.

After month I drop the fibro tablets but it was too late. Still it took half a year for me to see something was wrong, and it was mostly help from others that I really saw it.

So I seek help. First dr told she has no knowledge enough of my hard situation and wrote me sick leave and send to higher powers.

The higher powers started the desperate search for working medication for first Bipolar and someday when that's covered then fibro. Thankfully my adhd medication hasn't stop working.

First drug. Help my head yeah so +
But caused= dizziness, internal shaking, headache, constant bad feeling in stomach, eye problems, couldn't concentrate. Tiredness, So lot's of - - -

2 drug. Nothing good. Everything worse.

3 drug. Still under this one currently.
Helps head +
But. dizziness, eye problems, couldn't concentrate. Tiredness, hard to sleep, anxiety(hard one), heart drums like Ulrich playing high, hell of lot energy, anxiety even more, and still can't concentrate to do something, hard to think or drive a car. extra Drooling, face bit numb (good compo).

Now I must count again is it worth it.

But I know there's medication where has more + than -... Just need to find it. Hopefully soon.

I don't even hope or believe to live without medication. I need it for me to be comfortably in me and to be less of assholes to my loved ones. I need em to be even tiny bit part of society, visit relatives go to mall.. So… I hate to take chemicals but I need em.. Like really need.

Fibromyalgia

If you are not familiar with this damned thing, here's link to one of the many more official places to gain more knowledge.

To me this is a new fellow-traveller and I wasn't planning to do any writing about him yet, but then lately one evening he jump out of the closet suddenly and was like “did you miss me? “

I was actually driving a car then, felt fine and second later felt like burning rod was pushed through my right shoulder.

As said this is new to me, I haven't even have named the symptoms yet much, except the cottoncandyhead. And that's not originally my idea but something wife used to call when her head felt funny, it just seems fitting to this fibro slow… ThThinkin… Brains… It was either cottoncandy or oatmeal head… hmm yes, I do like to eat.

To me the worst is how it effects on my head. Pain is nasty and so is being tired but.. Pain is old friend to me, since I broke my knee and later my inter-vertebral disc, so only new here was the, how suddenly and random fibropain is.

But even that I've lived with ADHD whole life and struggled with bipolar disorder most of my adulthood.. This is new. See adhd makes my brain reeeally fast, world happens bit like slow motion sometimes. Bipolar makes me think I'm God and second later I'm worthless to be living (bit exaggerated), makes me act like there's different persons inside me even that it's just me changing mind and behavior really fast and many times a day.

But Fibromyalgia seems to slow me down, make me forget things, get me lost in my thoughts, like I really would be paddling trough oatmeal. I have difficulties to make decisions, I'm unsure about everything and I forget a lot, even if I've written it down.

Someday s are so bad that suddenly I just have to walk to another room, away my loving family because I feel so worthless. My brain does not comply my body is in pain and others have to step in to cover me. How can I not cry in these situations. When I see how big of a burden I have become.

I'm tired all the time, I can't sleep without some pills yet even that dream doesn't really refresh me, but I must try to keep up smile and be productive at work and understand what school means.

And most of time I just want to cry, because this is not me. 

I don't have any medication for this, yet. Story behind that goes like this.

I have adhd and bipolar disorder too, as said earlier. When I was diagnosed with fibro, I was given some drugs too, but beside that it did ease a bit of my sudden pains is also secretly mess up my head, and my bipolar medication. I dropped the fibro pills after month or two, because I could see it just made my situation worse, but what I didn't see, is that my bipolar medication didn't survive. I kept eating it, but it didn't work. Now, I believe it haven't ever worked too well, but enough for me to survive, but now, I started to slip back to my egomaniac arsehat personality that I really really hated, and when you added the random Fibro-Zombie there... weeelll.. it wasn't pretty. Basically I was zombie who thought he can do everything and is the king of the hill. 

So now, new doctor. trying to fix me. fist Bipolar, and when that's under control, we dive in to Fibromyalgia again.